Grace eludes you

I leave the restaurant after the sun has set. Rome is dark. I’m tired and need the shortest route to my hotel so I cut down a dim alley. The road turns rough. I trip along the way. I keep my head down, eyes squinting at my path, and so I don’t see the men first but hear them. They’re laughing. I move to one side of the alley and they move to the same side. I step the other way and so do they. There are four of them. I hear one speaking to me, but I don’t know what he is saying.

Their interest in me, their sound, turns me stony. I open my mouth and out comes not words, but strained guttural notes.

One man jogs past to stand behind me. Another puts his hand on my shoulder and backs me up, toward the wall, toward his friend. His friend is tall. They want to take my picture standing next to him. I’m short, a dwarf, which is funny, hysterical. I’m not real. Just a strange thing in the alley. The flash of their camera. I freeze. Then I’m back in the dark.

When I was a teenager, a man once watched me going up some stairs and he said, “Grace eludes you.” I seemed to be struggling, which struck him, I suppose, as ugly.

Does this man remember what he said to me? Does he return to the memory each time he sees stairs?

I still — two decades after this man watched me walk up the stairs — step aside to tie my shoe to allow people to go ahead of me. I fake phone calls so that others will walk up without me. I pretend to wait for someone who isn’t coming. I bide my time, clinging to my weak ruse of self protection, until no one is looking. I do not climb stairs until I can do so unobserved. I’ve never stopped preparing for the next person who will see me walk and deny me grace.

The way words stay, the way sentences stay, the way memories invade my present, the way a stranger looks at me and speaks: shards that become a mirror.

In Rome, men block my path. They are drunk. The tall one wants to leave, done with this picture project. Another man drops his phone. His friends laugh at his clumsiness. One taps the other’s chest and just like that they’re distracted by a new plan, a diverting interest, and they leave me without further incident and carry on with their night, never to think of this moment again.

Chloé Cooper Jones, Easy Beauty: A Memoir (Avid Reader Press / Simon & Schuster, April 5, 2022)

“I am in a bar in Brooklyn, listening to two men, my friends, discuss whether my life is worth living.”

So begins Chloé Cooper Jones’s bold, revealing account of moving through the world in a body that looks different than most. Jones learned early on to factor “pain calculations” into every plan, every situation. Born with a rare congenital condition called sacral agenesis which affects both her stature and gait, her pain is physical. But there is also the pain of being judged and pitied for her appearance, of being dismissed as “less than.” The way she has been seen—or not seen—has informed her lens on the world her entire life. She resisted this reality by excelling academically and retreating to “the neutral room in her mind” until it passed. But after unexpectedly becoming a mother (in violation of unspoken social taboos about the disabled body), something in her shifts, and Jones sets off on a journey across the globe, reclaiming the spaces she’d been denied, and denied herself.

I Live a Life Like Yours

I started Jan Grue’s new memoir listening to his story on Audible. It’s titled “I Live a Life Like Yours.”

Oh, no Jan. You so do not.

I’m walking listening to his story. Free to take a step, not giving a moment’s consideration to how I keep my balance. And then following this step with another and another and another.

Suffering from Sciatica DK? Put out a bit? YOU are suffering?

Grue was diagnosed as a child with a rare form of spinal atrophy. As Michael J. Fox explains in his book review, “all of the wins in his life are come-from-behind —  a person who is much more than what others see. He discovers that “to be stared at, gawked at, is …to be situated in a narrative that has already been written, and that is told by others.” “The world,” he says, “perceives a body with frail arms, legs locked into certain angles…in a large bulky wheelchair” as not…a whole man…He offers messages of wisdom that will resonate long after you’ve finished the memoir. “At some point or another I stopped thinking about myself as someone who needed repairing.

Dwight Garner is his book review describes “A Life Like Yours” a quietly brilliant book that warms slowly in the hands. And that it does. I, highly recommend the book.

Let me close with a passage from his memoir.


Since an early age, I had known that I had spinal muscular atrophy… I would like to think myself away from my body, away from my injured, worn ankles. But there is no me that exists apart from this body, in some unmarked form. That body would have lived an entirely different sort of life. And yet it haunts me. It casts another kind of shadow. I shut my eyes and go skiing each winter, I run 10K each morning. I dash off to another country at a moment’s notice, grab my carry-on, run out the door and hail a taxi, make my way quickly through the security check and sprint to the gate. I haven’t made arrangements for where I’ll stay when I arrive, I climb into a taxi and simply say: Drive me somewhere I haven’t been before.

I open my eyes.

— Jan Grue, I Live a Life Like Yours: A Memoir. B. L. Crook (Translator). (FSG Originals, August 17, 2021)

Because who is perfect? (Moved.)


Thank you Susan

The Present


Stick with this to the end…

Walking Cross-Town. On A Golden Autumn Day.

Steamy-Grates-walking-winter

I’m on the 5:40 am train to Grand Central.
I dose through most of the ride in.
The throngs spill out into Manhattan.

It’s 15° F, but feels like 0°.
Frigid wind gusts rush through the concrete canyons, whistling as they pass by.
Salt is gnawing on snow and ice.
Steam from underground tunnels billows out of steel grates and evaporates into air.
Now you see it, now you don’t.

The streets are beginning to stir.
Cabs. Delivery trucks. Construction workers.

I’m marching cross-town on 48th.
Headphones in. Playlist set to “My Top Rated.”

Gloves on.
Ear lobes are tingling, frost-bite workin’.
No hat. Can’t mess what hair I have left.

The wind shocks the corneas, my eyes water.
I see him a block away. A mirage.
I wipe my left eye.

It’s the legs I notice first.
They are suspended.
Swinging wildly, jointless.

I’m closing in.
Forearm crutches. Not one. Both arms.
He leaning in.
Right. Left. Right. Left. Right. Left.

I’m 30 feet away.
Continue reading “Walking Cross-Town. On A Golden Autumn Day.”