Monday Morning Wake-Up Call

“Make a list,” prods another Caitlin, so I try again and again and again. Lists of places to go. Dreams to interpret. Careers I might have enjoyed. Enormous statues I want to see. Languages I have learned and promptly forgotten. My line items are alternatively boring, plausible, unlikely and all of them seem to include an unmet Canadian need to drive a Zamboni.

What strange math. There is nothing like the tally of a life. All of our accomplishments, ridiculous. All of our striving, unnecessary. Our lives are unfinished and unfinishable. We do too much, never enough and are done before we’ve even started. We can only pause for a minute, clutching our to-do lists, at the precipice of another bounded day. The ache for more — the desire for life itself — is the hardest truth of all.

—  Kate Bowler, from “One Thing I Don’t Plan to Do Before I Die Is Make a Bucket List”. At 35, the doctors tell me I have Stage IV colon cancer and a slim chance of survival. (NY Times, August 28, 2021)

Tuesday Morning Wake-Up Call

I beg your pardon, I hear my disease answer in reply to my many charges leveled against it—of trespass, hijack, squatting, invasion, vandalism, anxiety, psychosis, psoriasis (of the mind), catatonia (of the spirit), a Gordian knot (of my reason), poisoning, pollution, warping—I did not grow in you uninvited by the way you lived and the life that you were given to begin with. I started in you with time and from time. I opened my eyes thanks to you finding the combination to unlock my presence in you by the way you lived your life. I had no intention to riot against you, my host, upon whom I depended for sustenance and a quiet life—which is all I ever wanted. I did not intend to finish you and me in the process. As long as you lived on, so would I. As long as you left me undisturbed, I would keep quiet and dormant in you until the end of your days.

You see me as spikes, barbed wire, and broken bottles, all cutting edges in you, and you forget that you set me going, turned me on and cut me loose in your body. I did not expect it. All your talk, reading, and tree-hugging company, and demonstrations for good, signaled to me that I would not have a hectic life that charged to a rapid end for my host and for me, but that I would be in a quiet place, unseen and ignored and quite content to amble to an octogenarian’s crawl and walker decked with tennis balls for a snail’s mobility, staggering brakes and watch-paint-dry stoppage. I could see it when you meditated or did your yoga or ran or lifted weights or ate greens, lots of them, with poker-faced enjoyment. I stopped thinking of a day when I would be free to run to my end and in the process, bring about yours preternaturally early. Continue reading “Tuesday Morning Wake-Up Call” →

Monday Morning Wake-Up Call

We hug across the gearbox console. I tell her I love her very much and she tells me she loves me too. I drive around the block of her school for her red face to clear and for her to stop hiccupping with upset. I beg her to forget everything bad that sprang out of my mouth. That I am a fool at the mercy of my diagnosis. That I lack the necessary control to be a proper father to her. She says she wants me to be her dad, none other, and that she loves me and she will be fine in a minute or two. She offers me my soaked handkerchief. I tell her to keep it in case she needs it again. She says that she is fine. We have never been closer and with such intensity—thanks to my cancer. We are late for the start of her school day. I tell her if she feels bad just call me or text and I will leave work and pick up her in under ten minutes. She says she will be fine, really. That I shouldn’t worry. That she feels better. She asks me how I am doing. I tell her I feel better too. We part with a brief lock of eyes and hurried mutual I-love-yous. Thank you, cancer. I called you a f*cker for turning up uninvited and ruining what was supposed to be the party of my life. Now I thank you. You turn up the intensity in my routine domesticity.

Walking. With Abby.

360 consecutive days.  Like in a row. Morning walk @ Daybreak.

Sun rises at 5:52 a.m, twilight is ~ 50 to 60 minutes earlier. You can do the math. Early.

I’m on I-95 N.  I shift in my seat and an electric current fires from lower back, through hip, down the leg and sizzles all the way down to the toes.

I’m back in Physical Therapy.  PT, is what the cool people call it. Diagnosis? Not pulled hamstring, but lower back (again). Two weeks in, better, but far from rehabbed.

I ease out of the car, and my conversation with my new Therapist flashes back.

“Where’s Abby?”

“Abby?” Continue reading “Walking. With Abby.” →

Lightly Child, Lightly.

Later I went inside, out of the nostalgic sad autumnal smell of leaf smoke, and talked a few minutes to the girl propped in bed with her hair in pigtails. Despite the nausea, her eyes were extraordinarily bright. I thought she looked at me with the soft intensity, the tenderness, that I had seen in the eyes of too many people dying of cancer-the look that says how lovely are the shapes and colors of life and how dear the faces of friends, how desirable it all is, how soon to be lost.

― Wallace Stegner, All the Little Live Things (Penguin Books, December 1, 1991, first published 1967)


Notes:

  • Post Title & Inspiration: Aldous Huxley: “It’s dark because you are trying too hard. Lightly child, lightly. Learn to do everything lightly. Yes, feel lightly even though you’re feeling deeply. Just lightly let things happen and lightly cope with them.”
  • Photo: Anne Jones with burning leaves